Caregiver Support

Taking Care of Elderly Parents with Dementia and Uninvolved Siblings

Navigate the challenges of caring for elderly parents with dementia and uninvolved siblings. Learn about common conflicts caused by issues of injustice and inheritance and how to protect yourself as a primary caregiver. Explore strategies for dealing with financial and logistical challenges.

Diane Carbo

09 Nov 2023 — 9 min read

Photo by Nik Shuliahin 💛💙 / Unsplash

Caring for elderly parents with dementia alongside disengaged siblings presents an ongoing challenge for many families. This topic is undeniably difficult to address. The stark reality is that countless primary caregivers often find themselves feeling isolated. They grapple with the frustration of uninvolved and uncooperative siblings or extended family members who contribute little or nothing to caregiving responsibilities.

Complex Sibling Dynamics

The task of caring for aging parents can resurface old sibling rivalries that lay dormant since everyone left the parental home. These tensions can fracture families, particularly when some members choose to remain uninvolved. In doing so, they inadvertently miss out on precious opportunities to build meaningful, positive memories with their aging parents.

Family Dysfunction Under Stress

Stress and crises have a way of magnifying existing family dynamics, often resulting in discord and conflict. Managing family relationships during such times is intricate. Most sibling disputes in caregiving situations can be distilled into two overarching themes: perceptions of injustice and concerns about inheritance.

Injustice and Unbalanced Burdens

It's a common scenario where one sibling shoulders the lion's share of caregiving responsibilities for their aging parents. This task frequently falls on a daughter who resides closest to the aging family member. Over time, the primary caregiver may develop resentment towards their less involved siblings. Often, male siblings rationalize their absence based on career priorities. Those living farther away may feel exempt from caregiving duties. The sibling in closest proximity often feels pressured to undertake the caregiving role due to the expectations of others.

Inheritance and Financial Conflicts

One of the most contentious areas siblings clash over is their parents' finances. Given that the average American household net worth has declined by 40% over a decade, fewer siblings anticipate substantial inheritances. This perception can intensify when a family member requires nursing home care or if the primary caregiver is perceived to be mishandling funds. Money-related issues, therefore, contribute to increased sibling conflict.

Preserving the Caregiving Sibling's Well-Being

Amid the conflict and challenges, it's imperative for the caregiving sibling to safeguard their own well-being from their siblings' actions. Many caregivers find themselves facing lawsuits or accusations of wrongdoing while simultaneously striving to provide dedicated care to their aging parents.

Nurturing Open Communication

Creating an environment of open communication is pivotal. Regular family meetings can facilitate discussions about the aging family member's wishes, short- and long-term goals for each individual, and the necessary steps to achieve those objectives. If direct communication is impossible due to heightened tensions, enlisting a neutral third party, such as a care manager or elder care consultant, may offer an alternative approach to find common ground.

Seeking Solutions

Developing a person-centered care profile can help share effective caregiving techniques and strategies. It's crucial for primary caregivers to take breaks and respite. In early stages of dementia, establishing a family caregiver contract can provide protection from uninvolved siblings and set clear expectations for everyone involved.

While family dynamics during caregiving can be fraught with tension, adopting strategies for effective communication and conflict resolution can help alleviate some of the challenges. The goal is to ensure the well-being and dignity of aging parents while maintaining harmony within the family unit.

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