Caregiver education and support is one of the key components we want the presidential candidates and State leaders to address.
We would like for you to share your stories of your day to day struggles with caregiving here.
There is a growing group of caregivers for an aging family member. While this can rewarding it is also emotionally and physically experience.
There are many types of family caregivers – the working caregiver, the reluctant caregiver, the long distance caregiver, the spouse caregiver etc. Most describe how they “fell into the role” of caregiver.
The majority have done so without any previous medical training. Most feel they are alone in their journey and lack ongoing support to help balance their various responsibilities such as work and taking care of their own family.
This creates a situation where family caregivers experience stress and feelings of being overwhelmed.
Having support and practical advice on the caregiving issues many face is essential for family caregivers to be successful. The present medical delivery system not only lacks support for the family caregiver, there is little to no education given, to deal with the issues caregivers face.
Many caregivers role includes, but is not limited to:
- Managing, and many times administering multiple medications, including injections and IVs.
- Providing wound care and other nursing procedures.
- Maneuvering through the medical delivery system and identifying, arranging and coordinating services and outside support.
- Providing transportation or arranging transportation to medical appointments and other community services.
- Communicating with health care professionals as they monitor their family member’s chronic medical conditions. They also alert the health care professionals to acute medical conditions their family member may be experiencing.
- Becoming “advocates” for their family member during health care visits and hospitalizations.
- Serving as a “health care navigator” during periods of transition, such as from hospital to home.
What we are advocating for
Caregivers are now doing the work that was once provided in a hospital setting. They are managing and providing care for a family member with a chronic disease, such as dementia, diabetes or cancer.
Having the resources of an caregiver education hotline 24-hour/7-day-a-week to assist the family caregiver to maneuver the medical delivery system. This would include answering questions regarding immediate health care concerns and issues relating to everyday caregiving issues. This hotline should also offer counseling services, teach coping strategies and even provide skills training for disease-specific medical conditions.
Development of a dementia care management program for family caregivers. Providing care for any type of dementia requires comprehensive interventions that meet the particular needs of each dementia patient. Since every dementia patient presents differently, care plans for each patient need to be specific to that patient.
To help us PLEASE SHARE YOUR STORY HERE
In order to show the need for this service, please share YOUR experiences with your aging family member.
Do you manage multiple medications?
Do you monitor health conditions? Give IV’s?
Do you handle behavioral issues? Spend sleepless nights up taking care of a family member?
Write a post on what having a help line, with a nurse navigator would mean to you.
Cannot figure out Medicare coverage and benefits?
Would having support have helped you provide better care? Saved time and energy on doing the research to find information?
Address the things that would make a difference in your caregiving journey regarding support and educational needs.
If you are not shy about your age, it would be most helpful to include your age and that of the family member or members you may be taking care of on this caregiving journey.
Now is your chance to have your say. Share your unique point of view!
PLEASE NOTE: This page is intended to provide an outlet for people that are providing and advocating for an aging senior in their life. It is not intended as a replacement for legal, medical or professional advice.
Want to express yourself?
Do it here!
You’re probably not alone–your personal experience could resonate with other readers on this site. Share your stories, ask your questions, rant, rave or stomp your feet!
No profanity or flames please this is a Family Friendly site.
Either way, we’d love to hear from you!
You don’t need to be a professional writer – all you need is the desire to share an experience or ask others for help with a situation or question. Â I love to hear stories of your family member and your situation .
So, please, share a few pictures of yourself or your family member. Â
Here are a few things you should know about sharing with Care Giver Relief.com :
If you are sharing a story, please make it about your caregiving experience, your family member that you are taking care of, or about any situation related to support services (good and bad), difficulties with insurance, concerns about alternative placement , such as a Nursing home or Assisted Living and tips on caregiving.
Remember, sharing your experience will help others with similar situations.
When it comes to a question, a little bit of information about your situation would be most helpful. You do notÂ have to follow the amount of content rule.
Here’s what we would not publish: No affiliate or commercial links please, no thinly disguised advertorials, no stories that have been published elsewhere, and no sales pitches for products or businesses. I’ve let a few through in the past – those links will be deleted in the coming weeks so please don’t bother sending any more in.
If you are sharing a story, according to Google rules and article must have between 300-700 words. Less is too short for a page, and longer is just… too long.Â
Don’t forget to provide a link to your personal website or blog so we can link back to you!
Try to include at least one photograph (it really does make a story come alive) but no more than four. Tell us what’s in each picture.
Â Don’t forget to include your full name and email so I can get back to you if I have any questions. Y
One more thing:
I’ll do everything I can to publish your story but sometimes I get submissions that simply don’t make the cut – because they don’t follow the guidelines. I can’t reply individually but if your piece doesn’t appear soon after you submit it, chances are it doesn’t meet requirements.
So please, read the above carefully – and hit that keyboard. The rest of us can’t wait to read your post
READ WHAT OTHERS ARE SHARING HERE…
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