The Struggle of Balance: Insights and Support for the Working Caregiver Facing a Parent's Dementia

Being a caregiver for a loved one with dementia is challenging and can lead to caregiver stress and burnout. Learn how to recognize the signs of burnout and take steps to prioritize your own health and well-being in this informative blog post by Diane Carbo.

The Struggle of Balance: Insights and Support for the Working Caregiver Facing a Parent's Dementia
Working caregivers struggle with work life balance

Question:

Really angry at the unfair treatment I'm receiving from my parent with dementia. All I do is work and come home to more work. Just getting off from 1.5 week long illness, not feeling entirely well and been in an anger crisis for 4 hours. Can't do this anymore and don't want to.

-Marisa

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Dear Marisa,

In today's fast-paced world, the role of working caregivers - those juggling employment while caring for family members - is becoming increasingly common and challenging. The AARP Public Policy Institute reports that about one in six employees is a caregiver, indicating the prevalence of this dual responsibility. This article aims to explore the multifaceted challenges faced by working caregivers, the support available, and strategies for balancing work and caregiving responsibilities effectively.

Understanding the Role of Working Caregivers

Working caregivers often find themselves in the demanding position of managing their job responsibilities while caring for a family member. This family member could be an aging parent, a spouse, a child, or a disabled family member. The caregiving tasks can range from medical management to daily living activities, requiring significant time and emotional investment.

The Impact on Health and Well-Being

The dual roles can take a toll on the caregiver's physical and mental health. Research shows that caregivers often experience higher levels of stress, anxiety, and physical health issues compared to non-caregivers. This can lead to work-related difficulties, impacting both their professional and personal lives.

Most working caregivers are women taking care of elderly parents

Workplace Challenges and Solutions

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Family Caregiving and Job Security

Many caregivers face challenges in maintaining work-life balance, leading to concerns about job security. The fear of needing to leave early, adjust work schedules, or take unpaid leave for caregiving can create tension and stress.

Employee Benefits and Support

Fortunately, more employers are recognizing the need to support caregiver employees. This includes offering employee benefits like flexible hours, remote work options, and access to employee assistance programs. These programs can provide resources and support for managing caregiving responsibilities alongside work.

Paid family leave is becoming a more common benefit, offering caregivers the necessary time off without the worry of losing income or job security. Employers are also exploring options like job sharing, compressed workweeks, and flex time to provide more flexibility for their employees with eldercare responsibilities.

The Role of Human Resources

The human resources department plays a crucial role in supporting employee caregivers. They are often the first point of contact for discussing family leave policies, flexible work arrangements, and other resources available to employees.

National Alliance and Support Groups

Organizations like the National Alliance for Caregiving and Caregiver Relief and support groups offer valuable resources and advocacy for caregivers. These groups provide a platform for sharing experiences, accessing information, and finding emotional support.

Caregiver support is important

Strategies for Balancing Work and Caregiving

Communicating with Your Work Supervisor

Open communication with your work supervisor is key. Discussing your caregiving situation can lead to understanding and possibly adjustments to your work schedule to accommodate your needs.

Building a Care Team Partner Support Group

Creating a care team involving other family members, friends, or professional caregivers can help distribute the caregiving tasks, reducing the burden on a single individual.

Caregiving coaching and care management services can assist you on your caregiving journey

Utilizing Employee Assistance Programs

Employee assistance programs can offer counseling, legal advice, and other services to support caregivers in managing their responsibilities and maintaining their well-being.

Prioritizing Tasks and Setting Boundaries

It’s important for caregivers to prioritize tasks and set boundaries to manage their time and energy effectively. This includes understanding when to say no and when to seek help.

Understanding your legal rights, such as those under the Family Medical Leave Act, can provide peace of mind regarding job security and leave options.

The Future of Caregiving in the Workplace

As the population ages and the number of caregivers rises, workplaces are adapting to support the needs of their employees. This includes redefining employee benefits, offering workplace flexibility, and providing access to resources that help in balancing work and caregiving.

The Importance of Research and Advocacy

Organizations like the AARP Public Policy Institute continue to research and advocate for better support for working caregivers. Their work helps in shaping policies and practices that benefit caregivers and employers alike.

Conclusion

Balancing work and family caregiving is a complex and challenging task. However, with the right support, resources, and strategies, it is possible to manage these dual roles effectively. Employers play a critical role in providing this support, offering benefits that cater to the unique needs of working caregivers. As our society continues to evolve, it's essential that we recognize and address the needs of this growing segment of the workforce to ensure their well-being and the well-being of those they care for.

The journey of a working caregiver is not an easy one, but with the collective efforts of employers, support groups, and families, it can become a more manageable and supported experience. By fostering an understanding and accommodating workplace environment, we can help ensure that those who give so much to care for their loved ones also receive the care and support they need in their professional lives.


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